https://doi.org/10.4081/qrmh.2024.12175
MeSsy identities: an ethnographic exploration of a multiple sclerosis support group
Submitted: 11 December 2023
Accepted: 21 May 2024
Published: 19 September 2024
Accepted: 21 May 2024
Abstract Views: 43
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All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.
Authors
The following is an ethnographic study of a multiple sclerosis (MS) support group. This study underscores the importance of access to counternarratives for individuals with chronic illness and disabilities through organizational structures such as support groups. This work can help those with disabilities/chronic diseases, such as MS, because it provides a space for discussing the communicative forces that shape individual experiences of living with disability and chronic illness. Thus, this study seeks to understand how pharmaceutical representatives’ and doctors’ grand medical narratives influence the communication of MS support group attendees and their construction/ performance of self. This study shows that participation in support groups provides a space to renegotiate identity in which new forms of self can develop external to the dominant discourse. The support group becomes a space where counternarratives of empowerment develop in the face of master narratives.
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How to Cite
Johnson, Alyse Keller. 2024. “MeSsy Identities: An Ethnographic Exploration of a Multiple Sclerosis Support Group”. Qualitative Research in Medicine and Healthcare 8 (2). https://doi.org/10.4081/qrmh.2024.12175.
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