EUROPEAN REFERENCE NETWORKS (ERNs): Could they become game-changers for patients with rare and complex diseases?


The European Reference Networks (ERNs) are innovative cross-border collaborative platforms with dedicated expertise centres and specialist doctors aiming to provide high-quality care to European patients with rare diseases whose diagnosis and treatment are often difficult, due to a lack of relevant knowledge and experience to manage these diseases locally.  The 4th  ERNs Conference, held in Brussels on November 21-22, 2018, presented the main clinical and organizational outcomes of the networks and promoted consultation between participants on existing challenges and scope for future improvements in their operation.