https://doi.org/10.4081/hls.2024.13066
The effect of family-supportive therapy on the burden of caregivers and Activities of Daily Living among stroke patients
Published: 9 September 2024
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All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.
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The role of family members in providing care for stroke patients at home is associated with heightened stress and burden on caregivers. Therefore, this study aimed to analyze the effect of family-supportive therapy on the burden of caregivers and Activities of Daily Living (ADL) among stroke patients.
A quasi-experimental method was used with a pre-test and post-test control group. The intervention of family-supportive therapy was given to the treatment group, while the control group received home visits. Samples of 40 caregivers in two primary health care centers in Surabaya were recruited using a multi-stage sampling method. The variables were the burden of caregivers and ADL of stroke patients, while Zarit Burden's Interview Schedule and Katz Index of Independence in ADL were used as instruments. Data analysis was carried out using a Paired t-test and a Manova test.
The results showed that the burden of caregivers in the treatment group decreased, but there was a re-increase after 2 weeks of therapy, and the burden in the control group also decreased. ADL of stroke patients in the treatment group increased and tended to persist up to 2 weeks after therapy, while the value in the control group decreased. Furthermore, family-supportive therapy did not have a significant effect on the burden of caregivers (p-value 0.12) and ADL (p-value 0.21). To address this challenge, modifying services through the implementation of community health programs, individual health efforts for stroke patients in the hospital and at home, group services for families providing primary health care, and home visits could be a comprehensive effort.
The study found that family-supportive therapy and health education through home visits reduced caregiver burden.
Ministry of Health Republic of Indonesia. Basic Health Research. Jakarta: Ministry of Health Republic of Indonesia; 2018.
Ogunlana MO, Dada OO, Oyewo OS, Odole AC, Ogunsan MO. Quality of life and burden of informal caregivers of stroke survivors. Hong Kong Physiother J. 2014;32(1):6–12.
DOI: https://doi.org/10.1016/j.hkpj.2013.11.003
Fadilah N, Rahariyani LD. The Impact of Independent of Activity Daily Living among Stroke Patients on Caregivers Burden. J Ners. 2020;14(3).
Collins LG, Swartz K. Caregiver care. Am Fam Physician. 2011 Jun 1;83(11):1309-17.
Gbiri CA, Olawale OA, Isaac SO. Stroke management: Informal caregivers’ burdens and strians of caring for stroke survivors. Ann Phys Rehabil Med. 2015 Apr 1;58(2):98–103.
DOI: https://doi.org/10.1016/j.rehab.2014.09.017
Kumar R, Kaur S, K R. Burden and Coping Strategies in Caregivers of Stroke Survivors. J Neurol Neurosci. 2015;06(s1).
DOI: https://doi.org/10.21767/2171-6625.S10005
Wurtiningsih B. Family Support For Stroke Patients In The Nervous Room Of Dr. Kariadi General Hospital Semarang. Medica Hospitalia J Clin Med [Internet]. 2013 Feb 8 [cited 2023 Aug 13];1(1). Available from: http://medicahospitalia.rskariadi.co.id/medicahospitalia/index.php/mh/article/view/42.
DOI: https://doi.org/10.36408/mhjcm.v1i1.42
Bakas T, Clark PC, Kelly-hayes M, King RB, Lutz BJ, Miller EL. Evidence for Stroke Family Caregiver and Dyad Interventions. Stroke. 2014;45:2836–52.
DOI: https://doi.org/10.1161/STR.0000000000000033
Bergstrom AL, Eriksson G, von Koch L, Tham K. Combined life satisfaction of persons with stroke and their caregivers: associations with caregiver burden and the impact of stroke. Health Qual Life Outcomes. 2011;9(1):1.
DOI: https://doi.org/10.1186/1477-7525-9-1
Legg LA, Lewis SR, Schofield-Robinson OJ, Drummond A, Langhorne P. Occupational therapy for adults with problems in activities of daily living after stroke. Cochrane Database Syst Rev. 2017 Jul 19;7(7):CD003585.
DOI: https://doi.org/10.1002/14651858.CD003585.pub3
Suprobo KA, Wiyono N, Setyanto AT. The Effect of Supportive Group Therapy on Caregiver Burden in Wives Who Act as Primary Caregivers for Stroke Patients. J Univ Sebel Maret. 2015;1–12.
Wahyuningsih SAA. Universitas Indonesia Library. Faculty of Nursing, University of Indonesia; 2011 [cited 2023 Aug 13]. The effect of supportive therapy on the ability of families to care for clients with chronic kidney failure (CKF) undergoing hemodialysis at PELNI Hospital, Jakarta. Available from: https://lib.ui.ac.id;
Hernawaty. Family Supportive Therapy Module: In Families With Mentally Ill Clients. Jakarta, Indonesia; 2015.
Scholten EWM, Hillebregt CF, Ketelaar M, Visser-Meily JMA, Post MWM. Measures used to assess impact of providing care among informal caregivers of persons with stroke, spinal cord injury, or amputation: a systematic review. Disabil Rehabil. 2021 Mar 13;43(6):746–72.
DOI: https://doi.org/10.1080/09638288.2019.1641847
Ratnasari P, Kristiyawati SP, Solechan A. Relationship Between Dependence Level On Daily Living Activity And Depression In Stroke Patients At Tugurejo Hospital Semarang. Scientific Paper [Internet]. 2012 [cited 2023 Aug 13];0(0). Available from: http://ejournal.stikestelogorejo.ac.id/index.php/ilmukeperawatan/article/view/70
Bekdemir A, İlhan N. Predictors of Caregiver Burden in Caregivers of Bedridden Patients. J Nurs Res. 2019 Jun;27(3):e24.
DOI: https://doi.org/10.1097/jnr.0000000000000297
Munir B. Basic Neurology. 2th edition. Jakarta: Sagung Seto; 2018.
Hinkle JL, Cheever KH. Clinical handbook for Brunner & Suddarth's textbook of medical-surgical nursing. Lippincott Williams & Wilkins; 2013 Nov 25.
Pambudi HA. Phenomenological Study: Family Anxiety in Stroke Patients Treated in the HND Room of Saint Lukas, Santa Elisabeth Hospital, Semarang [Internet]. 2009 [cited 2024 Aug 13]. Available from: https://www.semanticscholar.org/paper/Studi-Penomenologis-%3A-Kecemasan-Keluarga-Pada-Yang-Pambudi/321d42b1cafdaab97e55557c072c69eccd4c6367.
Handayani DY, Dewi DE. Analysis of quality of life of patients and families after stroke (with residual symptoms). Psycho Idea. 2009;7:35-44.
Malhotra R, Chei CL, Menon EB, Chow WL, Quah S, Chan A, et al. Trajectories of positive aspects of caregiving among family caregivers of stroke-survivors: the differential impact of stroke-survivor disability. Top Stroke Rehabil. 2018 May;25(4):261–8.
DOI: https://doi.org/10.1080/10749357.2018.1455369
Mckendry S, Wright M, Stevenson K. Why here and why stay? Students’ voices on the retention strategies of a widening participation university. Nurse Educ Today. 2014 May;34(5):872–7.
DOI: https://doi.org/10.1016/j.nedt.2013.09.009
Chow SKY, Wong FKY, Poon CYF. Coping and caring: Support for family caregivers of stroke survivors. J Clin Nurs. 2007;16(7 B):133–43.
DOI: https://doi.org/10.1111/j.1365-2702.2006.01711.x
Bakas T, Austin JK, Habermann B, Jessup NM, McLennon SM, Mitchell PH, et al. Telephone Assessment and Skill-Building Kit for Stroke Caregivers. Stroke. 2015 Dec;46(12):3478–87.
DOI: https://doi.org/10.1161/STROKEAHA.115.011099
Chow EOW, Nelson-becker H. Spiritual distress to spiritual transformation : Stroke survivor narratives from Hong Kong. J Aging Stud. 2010;24:313–24.
DOI: https://doi.org/10.1016/j.jaging.2010.06.001
Björkdahl A, Nilsson ÅL, Sunnerhagen KS. Can rehabilitation in the home setting reduce the burden of care for the next-of-kin of stroke victims? J Rehabil Med. 2007;39(1):27–32.
DOI: https://doi.org/10.2340/16501977-0001
Stuart GW. Pocket Book of Mental Health Nursing. 5th ed. Jakarta: EGC; 2007.
Azza A, Susilo C, Efendi F. Supportive group therapy as a prediction of psychological adaptation of breast cancer patients undergoing chemotherapy. Indian J Public Heal Res Dev. 2018;9(10):441.
DOI: https://doi.org/10.5958/0976-5506.2018.01384.0
Fadlulloh SF, Upoyo AS, Hartanto YD. The Relationship between the Level of Dependence in Fulfilling Daily Living Activities (ADLs) and Self-Esteem of Stroke Patients at the Neurology Polyclinic of Prof. Dr. Margono Soekarjo Hospital, Purwokerto. JKS. 2014;9(2):134–45..
Santoso TA. Independence In Eating, Bathing And Dressing Activities In Stroke Patients 6-24 Months After Occupational Therapy - Diponegoro University Institutional Repository (UNDIP-IR) [Internet]. 2003 [cited 2023 Aug 13]. Available from: http://eprints.undip.ac.id/12631/.
Mandic M, Rancic N. The recovery of motor function in post stroke patients. Med Arh. 2011;65(2):106–8.
Farmer O, Belton S, O’brien W. The Relationship between Actual Fundamental Motor Skill Proficiency, Perceived Motor Skill Confidence and Competence, and Physical Activity in 8-12-Year-Old Irish Female Youth. Sport. 2017;5(74).
DOI: https://doi.org/10.3390/sports5040074
Fadilah N, Rahariyani LD. The Impact of Independent of Activity Daily Living among Stroke Patients on Caregivers Burden. J Ners. 2019;14(3):188–94.
DOI: https://doi.org/10.20473/jn.v14i3.17047
How to Cite
Fadilah, N., Rahariyani, L. D., Yumni, H., & Dinarwiyata, D. (2024). The effect of family-supportive therapy on the burden of caregivers and Activities of Daily Living among stroke patients. Healthcare in Low-Resource Settings. https://doi.org/10.4081/hls.2024.13066
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