https://doi.org/10.4081/hls.2024.13048
The role of peer social support on family psychological resilience in caring for Chronic Kidney Disease patients receiving hemodialysis
Published: 9 September 2024
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All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.
Authors
Chronic Kidney Disease (CKD) is a disease that necessitates continuous Hemodialysis (HD) therapy, and families, as primary caregivers in Indonesia, play a crucial role in caring for CKD patients. However, HD therapy places a significant burden not only on patients but also on their families, requiring fostering family psychological resilience to mitigate such a burden. Although peer social support is an important external factor in chronic disease, it is still underdeveloped. Therefore, this study aimed to explore the correlation between peer social support and family psychological resilience in caring for CKD patients receiving HD.
This cross-sectional study used purposive sampling, engaging 134 families serving as caregivers for patients receiving HD therapy. The Berlin Social Support Scales (BSSS) and The Walsh Family Resilience Questionnaire (WFRQ) were adopted as instruments, and data were analyzed using univariate and Spearman tests.
The majority of families reported high levels of peer social support (75,37%), predominantly originating from other members facing similar challenges related to caring for CKD patients. Additionally, a significant relationship was observed between peer social support and family psychological resilience (p-value<0.05), showing that higher levels of peer support corresponded to higher family resilience.
In conclusion, there was a strong correlation between peer social support and family resilience in the context of caring for CKD patients. Healthcare professionals should integrate social support intervention by establishing social groups to enhance family resilience.
Rivera E, Clark-Cutaia MN, Schrauben SJ, Townsend RR, Lash JP, Hannan M, et al. Treatment Adherence in CKD and Support From Health care Providers: A Qualitative Study. Kidney Med. 2022;4(11):100545.
DOI: https://doi.org/10.1016/j.xkme.2022.100545
Bikbov B, Perico N, Remuzzi G. Disparities in Chronic Kidney Disease Prevalence among Males and Females in 195 Countries: Analysis of the Global Burden of Disease 2016 Study. Nephron. 2018;139(4):313–8.
DOI: https://doi.org/10.1159/000489897
Crews DC, Bello AK, Saadi G. 2019 World Kidney Day Editorial - burden, access, and disparities in kidney disease. J Bras Nefrol. 2019;41(1):1–9.
DOI: https://doi.org/10.1590/2175-8239-jbn-2018-0224
Pratiwi WN, Gayatri PR, Astutik WS, Pratama YG, Ayyaroh FA. The Role of Family Support in Stress and Anxiety Conditions in The Elderly with Chronic Kidney Disease Underwent Hemodialysis Therapy. Adi Husada Nurs J. 2023;9(1):20.
DOI: https://doi.org/10.37036/ahnj.v9i1.392
Ministry of Health Republic of Indonesia. Basic Health Research Results 2018. Jakarta: Ministry of Health Republic of Indonesia; 2018.
Karadag E, Ugur O, Mert H, Erunal M. The Relationship Between Psychological Resilience and Social Support Levels in Hemodialysis Patients. 2019;(6):9–15.
DOI: https://doi.org/10.30621/jbachs.2019.469
Tong A, Lowe A, Sainsbury P, Craig JC. Experiences of parents who have children with chronic kidney disease: A systematic review of qualitative studies. Pediatrics. 2008;121(2):349–60.
DOI: https://doi.org/10.1542/peds.2006-3470
Bayoumi MM. Subjective Burden on Family Carers of Hemodialysis Patients. Open J Nephrol. 2014;04(02):79–85.
DOI: https://doi.org/10.4236/ojneph.2014.42011
Taset Alvarez Y, Martinez Fajardo LLL. Family caregivers-of patients with chronic renal failure terminal psychological stress. MOJ Addict Med Ther. 2018;5(5):214–21.
DOI: https://doi.org/10.15406/mojamt.2018.05.00123
Hajmohammadi R, Shirazi M. Predicting Resilience via Social Support and Illness Perceptions Among Patients Undergoing Hemodialysis. Jundishapur J Chronic Dis Care. 2017;6(3).
DOI: https://doi.org/10.5812/jjcdc.14427
Silva Junior GBD, Barbosa AMDO, Silva GPFD, Silva LND, Lima GR, Santana CC, et al. Depressive symptoms in chronic kidney disease: A comparison between patients on dialysis versus conservative treatment. Nefrología Latinoamericana. 2017 Oct;14(4):153–9..
DOI: https://doi.org/10.1016/j.nefrol.2017.05.001
Mahmoud DAM, Saad A, Abdelhamid YH, El Hawary Y. Depression and psychosocial burden among caregivers of children with chronic kidney disease. Middle East Curr Psychiatry. 2021;28(1).
DOI: https://doi.org/10.1186/s43045-021-00092-x
Wei W, Dong L, Ye J, Xiao Z. Current status and influencing factors of family resilience in families of children with epilepsy: a cross-sectional study. Front Psychiatry. 2024 Mar 7;15:1354380.
DOI: https://doi.org/10.3389/fpsyt.2024.1354380
Sledge, MSW, LCSW R, Meyer, PhD D, Heiden-Rootes, PhD K, Zubatsky. PhD M, Browne, PhD T, Philipneri, MD M. Application of the Family Resilience Framework to Dyadic Shared Decision-Making in Dialysis: An Interpretive Phenomenological Inquiry. J Nephrol Soc Work. 2021;45(2):19–30.
DOI: https://doi.org/10.61658/jnsw.v45i2.7
Oh S, Chang SJ. Concept Analysis: Family Resilience. Open J Nurs. 2014;04(13):980–90.
DOI: https://doi.org/10.4236/ojn.2014.413105
Oktaverina S. Differences in Resilience of Individuals with Low Socioeconomic Status Reviewed by Gender. J Ilm Bimbing Konseling Undiksha. 2021;12(2):280–6.
DOI: https://doi.org/10.23887/jibk.v12i2.34210
White N, Richter J, Koeckeritz J, Munch K, Walter P. “Going forward”’: Family resiliency in patients on hemodialysis. J Fam Nurs. 2004;10(3):357–78.
DOI: https://doi.org/10.1177/1074840704267163
Al atawi AA, Alaamri MM. The Relationship between Perceived Social Support and Adherence to Treatment Regimens among Patients Undergoing Hemodialysis: A Scoping Review. Evidence-Based Nurs Res. 2021;4(1):17.
DOI: https://doi.org/10.47104/ebnrojs3.v4i1.231
Nadrowska N, Błażek M, Lewandowska-Walter A, Błażek W, Zdun-Ryżewska A. Walsh Family Resilience Questionnaire—Polish Adaptation (WFRQ-PL). Int J Environ Res Public Health. 2022;19(7).
DOI: https://doi.org/10.3390/ijerph19074197
Pretto CR, Winkelmann ER, Hildebrandt LM, Barbosa DA, Colet C de F, Stumm EMF. Quality of life of chronic kidney patients on hemodialysis and related factors. Rev Lat Am Enfermagem. 2020;28:1–11.
DOI: https://doi.org/10.1590/1518-8345.3641.3327
Chang L, Zhang S, Yan Z, Li C, Zhang Q, Li Y. Symptom burden, family resilience, and functional exercise adherence among postoperative breast cancer patients. Asia-Pacific J Oncol Nurs. 2022;9(11):100129.
DOI: https://doi.org/10.1016/j.apjon.2022.100129
Jafari H, Ebrahimi A, Aghaei A, Khatony A. The relationship between care burden and quality of life in caregivers of hemodialysis patients. BMC Nephrol. 2018;19(1):321.
DOI: https://doi.org/10.1186/s12882-018-1120-1
Elliott MJ, Love S, Fox DE, Verdin N, Donald M, Manns K, et al. ’It’s the empathy’-defining a role for peer support among people living with chronic kidney disease: a qualitative study. BMJ Open. 2022;12(5):e057518.
DOI: https://doi.org/10.1136/bmjopen-2021-057518
Pasyar N, Rambod M, Jowkar M. The effect of peer support on hope among patients under hemodialysis. Int J Nephrol Renovasc Dis. 2020;13:37–44.
DOI: https://doi.org/10.2147/IJNRD.S240756
Wardana AK, Dewi EI, Fitria Y. The Relationship between Social Support and Resilience of COVID-19 Survivors in the Kaliwates Jember Health Center Work Area. NERS J Keperawatan. 2023;19(1):1.
DOI: https://doi.org/10.25077/njk.19.1.1-11.2023
Simbolon NF. Dukungan Keluarga dan Kualitas Hidup Pasien Hemodialisa di RSUD Dr. Pirngadi Medan [Internet] [Thesis]. Universitas Sumatera Utara; 2018 [cited 2023 Aug 2]. Available from: https://repositori.usu.ac.id/handle/123456789/8913.
Sousa H, Ribeiro O, Paúl C, Costa E, Miranda V, Ribeiro F, et al. Social support and treatment adherence in patients with end-stage renal disease: A systematic review. Semin Dial. 2019;32(6):562–74.
DOI: https://doi.org/10.1111/sdi.12831
National Kidney Foundation. Benefits of Peer Support. New York: National Kidney Foundation; 2016.
Supriati L, Sudiana IK, Nihayati HE, Ahsan, Rodli M, Kapti RE. Perspective of Uncertainty and Emotional Responses in Breast Cancer Patients During the COVID-19 Pandemic. SAGE Open Nurs. 2022 Sep 7;8:23779608221124294.
DOI: https://doi.org/10.1177/23779608221124294
Supriati L, Sudiana IK, Nihayati HE, Ahsan A, Rodli M. Emotional Regulation Intervention for Reducing Distress Psychologist in Breast Cancer Woman: Systematic Review. Journal of International Dental and Medical Research. 2021;14(3):1296-1301.
Browne T. The Role for Nephrology Social Work in the New Kidney Disease Paradigm—Moving Ahead by Remembering How We Got Here. J Nephrol Soc Work. 2019;43(1):9–22.
DOI: https://doi.org/10.61658/jnsw.v43i1.33
Boatemaa Benson R, Cobbold B, Opoku Boamah E, Akuoko CP, Boateng D. Challenges, Coping Strategies, and Social Support among Breast Cancer Patients in Ghana. Advances in Public Health. 2020;2020(1):4817932.
DOI: https://doi.org/10.1155/2020/4817932
Nuriyyatiningrum N, Gimmy A, Djunaidi A, Akorede Q. Psychoeducational support group to the resilience of caregivers of chronic kidney disease patients undergoing hemodialysis. Psikohumaniora: Jurnal Penelitian Psikologi. 2020 Apr 30;5:89.
DOI: https://doi.org/10.21580/pjpp.v5i1.3572
Supriati L, Sudiana IK, Nihayati HE, Ahsan, Rodli M, Kapti RE. Patient and illness factors influencing fear of recurrence in breast cancer women. J Pak Med Assoc. 2023;73(2):S26–9.
DOI: https://doi.org/10.47391/JPMA.Ind-S2-6
How to Cite
Supriati, L., Sunarto, M., Ulya, I., Rodli, M., Saputra, R. Y., Nova, R., & Hidaayah, N. (2024). The role of peer social support on family psychological resilience in caring for Chronic Kidney Disease patients receiving hemodialysis. Healthcare in Low-Resource Settings. https://doi.org/10.4081/hls.2024.13048
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