Development of a spiritual-based palliative care model for the quality of life of people with HIV/AIDS

Submitted: 16 September 2023
Accepted: 14 November 2023
Published: 17 November 2023
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People living with HIV (PLHIV) require a focus on their quality of life to prevent deterioration. This study aims to establish a spiritual-based palliative nursing model to enhance the quality of life for PLHIV. A cross-sectional study of 225 PLHIV receiving treatment at Said Sukanto Hospital, Jakarta. Data, including demographic, disease, psychological, spiritual, support, services, spiritual-based palliative care, spiritual meaning in illness experience, and quality of life variables, were collected using a researcher-modified questionnaire. Data were analyzed using descriptive and structural analysis through Partial Least Square Equation Modeling (SEM-PLS). The outer model demonstrated construct validity (λ > 0.5) and high reliability (composite reliability > 0.7). The inner model exhibited moderate power (R2 > 0.33) and predictive relevance (1.009). Goodness-of-fit indicators (RMS Theta = 0.072, NFI = 0.971, SRMR = 0.098) confirmed the model's suitability. Hypothesis testing indicated the significance of all variables (p < 0.05). The findings support the application of a spiritual-based palliative nursing model to enhance the quality of life for PLHIV. This model offers a holistic approach encompassing physical, psychological, social, and spiritual well-being, providing a comprehensive framework for healthcare providers and policymakers to improve care for PLHIV.

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Tarigan YN, Woodman RJ, Miller ER, Wisaksana R, Wignall FS, Ward PR. Changes in the HIV continuum of care following expanded access to HIV testing and treatment in Indonesia: a retrospective population-based cohort study. PLoS One 2020;15:e0239041. DOI: https://doi.org/10.1371/journal.pone.0239041
Misgina KH, Weldu MG, Gebremariam TH, Weledehaweria NB, Alema HB, Gebregiorgis YS, et al. Predictors of mortality among adult people living with HIV/AIDS on antiretroviral therapy at Suhul Hospital, Tigrai, Northern Ethiopia: a retrospective follow-up study. J Heal Popul Nutr 2019;38:1–10. DOI: https://doi.org/10.1186/s41043-019-0194-0
Sari PI, Martawinarti RTSN, Lataima NS, Berhimpong VM. The Quality of Life of Patients with HIV/AIDS Undergoing Antiretroviral Therapy: A Systematic Review. J Ners 2019;14:50–4. DOI: https://doi.org/10.20473/jn.v14i3.16978
Ekstrand ML, Heylen E, Mazur A, et al. The role of HIV stigma in ART adherence and quality of life among rural women living with HIV in India. AIDS Behav 2018;22:3859–68. DOI: https://doi.org/10.1007/s10461-018-2157-7
Yan H, Li X, Li J, et al. Association between perceived HIV stigma, social support, resilience, self-esteem, and depressive symptoms among HIV-positive men who have sex with men (MSM) in Nanjing, China. AIDS Care 2019;31:1069–76. DOI: https://doi.org/10.1080/09540121.2019.1601677
Lu H, Sheng W, Liao S, et al. The changes and the predictors of suicide ideation and suicide attempt among HIV‐positive patients at 6–12 months post diagnosis: A longitudinal study. J Adv Nurs 2019;75:573–84. DOI: https://doi.org/10.1111/jan.13883
Satriawibawa IWE, Dewi K, Wati K, et al. Factors associated with anxiety in children and adolescents with HIV infection. Int J HIV-Relat Prob 2022;21(2). DOI: https://doi.org/10.5114/hivar.2022.115828
Prasetyanti DK, Nikmah AN, Tantriyani K. The Effect of Health Promotion Through Audio Visual Media About HIV AIDS On Housewives Knowledge. Str J Ilm Kesehat 2021;10:1272–9.
Fuspita Y, Yona S, Waluyo A. HIV testing of housewives with HIV in Lampung, Indonesia: A qualitative study. Enfermería Clínica 2019;29:879–84. DOI: https://doi.org/10.1016/j.enfcli.2019.04.133
Hasanah H, Sulistiadi W. HIV/AIDS Infection among Housewives in Asia: A Systematic Review. Promot Popul Ment Heal Well-Being 2019;219–28. DOI: https://doi.org/10.26911/theicph.2019.02.38
Mekonnen N, Abdulkadir M, Shumetie E, et al. Incidence and predictors of loss to follow-up among HIV infected adults after initiation of first line anti-retroviral therapy at University of Gondar comprehensive specialized Hospital Northwest Ethiopia, 2018: retrospective follow up study. BMC Res Notes 2019;12:1–7. DOI: https://doi.org/10.1186/s13104-019-4154-y
Nursalam N, Sukartini T, Mafula D, Priyantini D. DREAMS Partnership: Pemberdayaan Perempuan untuk Meningkatkan Upaya Promotif, Preventif dan Resilience HIV/AIDS pada Remaja Putri dan Ibu Rumah Tangga di Kabupaten Tulungagung [DREAMS Partnership: Empowering Women to Improve HIV/AIDS Promotive, Preventive. Community Reinf Dev J 2022;1:7–17. DOI: https://doi.org/10.35584/reinforcementanddevelopmentjournal.v1i2.28
Nursalam N, Sukartini T, Priyantini D, et al. Risk factors for psychological impact and social stigma among people facing COVID 19: A systematic review. Syst Rev Pharm 2020;11:1022–8.
Dahlui M, Azahar N, Bulgiba A, et al. HIV/AIDS related stigma and discrimination against PLWHA in Nigerian population. PLoS One. 2015;10:e0143749. DOI: https://doi.org/10.1371/journal.pone.0143749
Rohman, Nursalam, Sukartini T, Abdullah RA. The relationship between knowledge and spirituality with the prevention behavior of infection transmission in PLWHA. Indian J Public Heal Res Dev 2019;10:2817–22. DOI: https://doi.org/10.5958/0976-5506.2019.02300.3
Johnson SM, Naidoo AV. A psychoeducational approach for prevention of burnout among teachers dealing with HIV/AIDS in South Africa. AIDS Care - Psychol Socio-Medical Asp AIDS/HIV 2017;29:73–8. DOI: https://doi.org/10.1080/09540121.2016.1201193
Motumma A, Negesa L, Hunduma G, Abdeta T. Prevalence and associated factors of common mental disorders among adult patients attending HIV follow up service in Harar town, Eastern Ethiopia: A cross-sectional study. BMC Psychol. 2019;7:11. DOI: https://doi.org/10.1186/s40359-019-0281-4
Wyatt GE, Gómez CA, Hamilton AB, et al. The intersection of gender and ethnicity in HIV risk, interventions, and prevention: New frontiers for psychology. Am Psychol 2013;68:247–60. DOI: https://doi.org/10.1037/a0032744
Van Velthoven MHMMT, Brusamento S, Majeed A, Car J. Scope and effectiveness of mobile phone messaging for HIV/AIDS care: A systematic review. Psychol Health Med 2013;18:182–202. DOI: https://doi.org/10.1080/13548506.2012.701310
Logie C, James L, Tharao W, Loutfy M. Associations between HIV-Related stigma, racial discrimination, gender discrimination, and depression among hiv-positive african, caribbean, and black women in Ontario, Canada. AIDS Patient Care STDS 2013;27:114–22. DOI: https://doi.org/10.1089/apc.2012.0296
Rueda S, Mitra S, Chen S, et al. Examining the associations between HIV-related stigma and health outcomes in people living with HIV/AIDS: a series of meta-analyses. BMJ Open 2016;6:e011453. DOI: https://doi.org/10.1136/bmjopen-2016-011453
Garett R, Smith J, Chiu J, Young SD. HIV/AIDS stigma among a sample of primarily African-American and Latino men who have sex with men social media users. AIDS Care 2016;28:731–5. DOI: https://doi.org/10.1080/09540121.2016.1146395
Bornet MA, Rubli Truchard E, Rochat E, et al. Factors associated with quality of life in elderly hospitalised patients undergoing post-acute rehabilitation: a cross-sectional analytical study in Switzerland. BMJ Open 2017;7:e018600. DOI: https://doi.org/10.1136/bmjopen-2017-018600
Mahathir M, Wiarsih W, Permatasari H. How Do People Living with HIV Acquire HIV Related Information: A Qualitative Evaluation of Jakarta Setting. J Ners 2020;15:126–34. DOI: https://doi.org/10.20473/jn.v15i2.19432
Martawinarti RTSN, Nursalam N, Wahyudi AS. Lived Experience of People Living with HIV/AIDS Undergoing Antiretroviral Therapy: A Qualitative Study. J Ners 2020;15:157–63. DOI: https://doi.org/10.20473/jn.v15i1Sp.19002
Rooney AS, Moore RC, Paolillo EW, et al. Depression and aging with HIV: associations with health-related quality of life and positive psychological factors. J Affect Disord 2019;251:1–7. DOI: https://doi.org/10.1016/j.jad.2019.03.025

How to Cite

Rohman, R., Nursalam, N., Sukartini, T., Hamidah, H., Supatmi, S., Priyantini, D., Ayatulloh, D., & Umeda, M. (2023). Development of a spiritual-based palliative care model for the quality of life of people with HIV/AIDS. Healthcare in Low-Resource Settings, 11(2). https://doi.org/10.4081/hls.2023.11737