Participatory community-based arts for older people living with dementia in the community: how are they evaluated? A scoping review

Submitted: 7 November 2020
Accepted: 14 January 2021
Published: 23 February 2021
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Although the interests in participative arts for people living with a dementia has increased over the last decade, what is yet to be reviewed is how participatory community- based arts activities for this group of people are evaluated. The overall aim of the following scoping review is to understand the scope of measurement/evaluation methods/approaches used in studies that recruited participants with dementia from the community (not from health/clinical or residential aged care settings or nursing homes) and delivered community-based participatory arts activities/programs (not art therapy programs) to them. The methodological framework by Arksey and O’Malley (2005) for undertaking a scoping review article was applied to this study. Collation, summarizing and reporting the results was carried out considering the research questions. 7 articles met inclusion/exclusion criteria published from 2013 to 2020. The type of arts activities included co-designs and co-creation of various types of arts (n=1), museum visiting and art-making activities (n=4), artistic education-based program (n=1), group singing (n=1). This scoping review shed light on the paucity of research in which older people living with dementia were recruited from the community (not healthcare/clinical settings) to participate in participatory community- based art activities. Also, the results revealed that evaluation of participatory community-based arts activities for older people living with dementia in the community should include methods/techniques to get a deeper insight into the participants’ values and perspectives and the social interaction benefits of such programs.

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Dicker D, Nguyen G, Abate D, et al. Global, regional, and national age-sex-specific mortality and life expectancy, 1950–2017: a systematic analysis for the Global Burden of Disease Study 2017. Lancet 2018;392:1684-735. DOI: https://doi.org/10.1016/S0140-6736(18)31891-9
Livingston G, Sommerlad A, Orgeta V, et al. Dementia prevention, intervention, and care. Lancet 2017;390:2673-734. DOI: https://doi.org/10.1016/S0140-6736(17)31363-6
World Health Organization. Dementia 2017. Available from: https://www.who.int/mental_health/mhgap/dem_slides.pdf
World Health Organization. Dementia: a public health priority: World Health Organization; 2012.
Wu YT, Clare L, Jones IR, et al. Inequalities in living well with dementia - The impact of deprivation on well‐being, quality of life and life satisfaction: Results from the improving the experience of dementia and enhancing active life study. Int J Geriat Psychiat 2018;33:1736-42. DOI: https://doi.org/10.1002/gps.4998
Biggs S, Carr A, Haapala I. Dementia as a source of social disadvantage and exclusion. Austral J Ageing 2019;38:26-33. DOI: https://doi.org/10.1111/ajag.12654
Riley RJ, Burgener S, Buckwalter KC. Anxiety and stigma in dementia: a threat to aging in place. Nursing Clin 2014;49:213-31.
Batsch NL, Mittelman MS. Overcoming the stigma of dementia. World Alzheimer Report 2012;1:36-8.
Walsh K, Scharf T, Keating N. Social exclusion of older persons: a scoping review and conceptual framework. Eur J Ageing 2017;14:81-98. DOI: https://doi.org/10.1007/s10433-016-0398-8
Kasper JD, Freedman VA, Spillman BC, Wolff JL. The disproportionate impact of dementia on family and unpaid caregiving to older adults. Health Affairs 2015;34:1642-9. DOI: https://doi.org/10.1377/hlthaff.2015.0536
Hackett RA, Steptoe A, Cadar D, Fancourt D. Social engagement before and after dementia diagnosis in the English Longitudinal Study of Ageing. PLoS One 2019;14(8). DOI: https://doi.org/10.1371/journal.pone.0220195
Sun W, Clarke S-L, Madahey H, Zhou P. Recovery intervention to promote social connectedness through social recreational programs for persons with dementia: a critical analysis. advances in dementia research. IntechOpen; 2019. DOI: https://doi.org/10.5772/intechopen.83784
Tsekleves E, Bingley AF, Luján Escalante MA, Gradinar A. Engaging people with dementia in designing playful and creative practices: Co-design or co-creation? Dementia 2020;19:915-31. DOI: https://doi.org/10.1177/1471301218791692
Melunsky N, Crellin N, Dudzinski E, et al. The experience of family carers attending a joint reminiscence group with people with dementia: A thematic analysis. Dementia 2015;14:842-59. DOI: https://doi.org/10.1177/1471301213516332
Innes A, Page SJ, Cutler C. Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences. Dementia 2016;15:1643-65. DOI: https://doi.org/10.1177/1471301215570346
Stubbs B, Eggermont L, Soundy A, et al. What are the factors associated with physical activity (PA) participation in community dwelling adults with dementia? A systematic review of PA correlates. Archiv Gerontol Geriatr 2014;59:195-203. DOI: https://doi.org/10.1016/j.archger.2014.06.006
Noone S, Jenkins N. Digging for Dementia: Exploring the experience of community gardening from the perspectives of people with dementia. Aging Mental Health 2018;22:881-8. DOI: https://doi.org/10.1080/13607863.2017.1393793
Selkrig M. Learning about ourselves from others: transformation of artists’ identities through community-based arts practice. Int J Lifelong Educ 2011;30:577-89. DOI: https://doi.org/10.1080/02601370.2011.570875
Richards M, Lawthom R, Runswick-Cole K. Community-based arts research for people with learning disabilities: challenging misconceptions about learning disabilities. Disabil Soc 2019;34:204-27. DOI: https://doi.org/10.1080/09687599.2018.1522243
Lagacé M, Briand C, Desrosiers J, Larivière N. A qualitative exploration of a community-based singing activity on the recovery process of people living with mental illness. Br J Occupat Ther 2016;79:178-87. DOI: https://doi.org/10.1177/0308022615599171
Stickley T, Hui A. Social prescribing through arts on prescription in a UK city: participants' perspectives (part 1). Public Health 2012;126:574-9. DOI: https://doi.org/10.1016/j.puhe.2012.04.002
Burnside LD, Knecht MJ, Hopley EK, Logsdon RG. here: now - Conceptual model of the impact of an experiential arts program on persons with dementia and their care partners. Dementia 2017;16:29-45. DOI: https://doi.org/10.1177/1471301215577220
Unadkat S, Camic PM, Vella-Burrows T. Understanding the experience of group singing for couples where one partner has a diagnosis of dementia. Gerontologist 2017;57:469-78.
Stickley T, Wright N, Slade M. The art of recovery: outcomes from participatory arts activities for people using mental health services. J Mental Health 2018;27:367-73. DOI: https://doi.org/10.1080/09638237.2018.1437609
Castora-Binkley M, Noelker L, Prohaska T, Satariano W. Impact of arts participation on health outcomes for older adults. J Aging Human Arts 2010;4:352-67. DOI: https://doi.org/10.1080/19325614.2010.533396
Qureshi H. Outcomes in social care practice. Social Policy Research Unit 2001; 2001;Volume number 7.
Camic PM, Tischler V, Pearman CH. Viewing and making art together: a multi-session art-gallery-based intervention for people with dementia and their carers. Aging Mental Health 2014;18:161-8. DOI: https://doi.org/10.1080/13607863.2013.818101
Lyons S, Karkou V, Roe B, et al. What research evidence is there that dance movement therapy improves the health and wellbeing of older adults with dementia? A systematic review and descriptive narrative summary. Arts Psychother 2018;60:32-40. DOI: https://doi.org/10.1016/j.aip.2018.03.006
Windle G, Algar-Skaife K, Caulfield M, et al. Enhancing communication between dementia care staff and their residents: an arts-inspired intervention. Aging Mental Health 2019:1-10. DOI: https://doi.org/10.1080/13607863.2019.1590310
Zeilig H, Killick J, Fox C. The participative arts for people living with a dementia: a critical review. Int J Ageing Later Life 2014;9:7-34. DOI: https://doi.org/10.3384/ijal.1652-8670.14238
Lee R, Wong J, Shoon WL, et al. Art therapy for the prevention of cognitive decline. Arts Psychother 2019;64:20-5. DOI: https://doi.org/10.1016/j.aip.2018.12.003
Young R, Camic PM, Tischler V. The impact of community-based arts and health interventions on cognition in people with dementia: A systematic literature review. Aging Mental Health 2016;20:337-51. DOI: https://doi.org/10.1080/13607863.2015.1011080
Pickett J, Bird C, Ballard C, et al. A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025. Int J Geriatr Psychiat 2018;33:900-6. DOI: https://doi.org/10.1002/gps.4868
Gargon E, Gurung B, Medley N, et al. Choosing important health outcomes for comparative effectiveness research: a systematic review. PLoS One 2014;9(6). DOI: https://doi.org/10.1371/journal.pone.0099111
Sinha I, Jones L, Smyth RL, Williamson PR. A systematic review of studies that aim to determine which outcomes to measure in clinical trials in children. PLoS Med 2008;5(4). DOI: https://doi.org/10.1371/journal.pmed.0050096
Moniz-Cook E, Vernooij-Dassen M, Woods R, et al. A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging Mental Health 2008;12:14-29. DOI: https://doi.org/10.1080/13607860801919850
Smith S, Lamping D, Banerjee S, et al. Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technol Assess (Winchester, England) 2005;9:1-93. DOI: https://doi.org/10.3310/hta9100
Ward MC, Milligan C, Rose E, et al. The benefits of community-based participatory arts activities for people living with dementia: a thematic scoping review. Arts Health 2020:1-27. DOI: https://doi.org/10.1080/17533015.2020.1781217
Levac D, Colquhoun H, O'Brien KK. Scoping studies: advancing the methodology. Implement Sci 2010;5:69. DOI: https://doi.org/10.1186/1748-5908-5-69
Makhoul J, Chehab RF, Shaito Z, Sibai AM. A scoping review of reporting ‘Ethical Research Practices’ in research conducted among refugees and war-affected populations in the Arab world. BMC Med Ethics 2018;19:36. DOI: https://doi.org/10.1186/s12910-018-0277-2
Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Social Res Methodol 2005;8:19-32. DOI: https://doi.org/10.1080/1364557032000119616
Beard RL. Art therapies and dementia care: A systematic review. Dementia 2012;11:633-56. DOI: https://doi.org/10.1177/1471301211421090
Letts L, Wilkins S, Law M, et al. Critical review form-qualitative studies (version 2.0); 2007. Available from: https://www.unisa.edu.au/contentassets/72bf75606a2b4abcaf7f17404af374ad/7b-mcmasters_qualreview_version2-01.pdf
Camic PM, Hulbert S, Kimmel J. Museum object handling: A health-promoting community-based activity for dementia care. J Health Psychol 2019;24:787-98. DOI: https://doi.org/10.1177/1359105316685899
Schall A, Tesky VA, Adams A-K, Pantel J. Art museum-based intervention to promote emotional well-being and improve quality of life in people with dementia: The ARTEMIS project. Dementia 2018;17:728-43. DOI: https://doi.org/10.1177/1471301217730451
Ullán AM, Belver MH, Badía M, et al. Contributions of an artistic educational program for older people with early dementia: An exploratory qualitative study. Dementia 2013;12:425-46. DOI: https://doi.org/10.1177/1471301211430650
Wieczorkiewicz A, Hooper-Greenehill E. Museums and the Shaping of Knowledge, E. Hooper-Greenehill, Routledge, London and New York 1993:[recenzja]. Etnografia Polska. 1997;41(1-2).
Kugler P, Turvey M, Malloy T, et al. Steps to an ecology of mind. Chicago: University of Chicago Press; 2000.
Cohen GD, Perlstein S, Chapline J, et al. The impact of professionally conducted cultural programs on the physical health, mental health, and social functioning of older adults. The Gerontologist 2006;46:726-34. DOI: https://doi.org/10.1093/geront/46.6.726
Larner A. Addenbrooke's Cognitive Examination (ACE) for the diagnosis and differential diagnosis of dementia. Clin Neurol Neurosur 2007;109:491-4. DOI: https://doi.org/10.1016/j.clineuro.2007.04.004
Kaufer DI, Cummings JL, Ketchel P, et al. Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. J Neuropsychiat Clin Neurosci 2000;12:233-9. DOI: https://doi.org/10.1176/jnp.12.2.233
Johnson J, Culverwell A, Hulbert S, et al. Museum activities in dementia care: Using visual analog scales to measure subjective wellbeing. Dementia 2017;16:591-610. DOI: https://doi.org/10.1177/1471301215611763
Kuemmel A, Haberstroh J, Pantel J. CODEM instrument: developing a tool to assess communication behavior in dementia. GeroPsych 2014;27:23-31. DOI: https://doi.org/10.1024/1662-9647/a000100
Bygren LO, Konlaan BB, Johansson S-E. Attendance at cultural events, reading books or periodicals, and making music or singing in a choir as determinants for survival: Swedish interview survey of living conditions. BMJ 1996;313:1577-80. DOI: https://doi.org/10.1136/bmj.313.7072.1577
Glass TA, De Leon CM, Marottoli RA, Berkman LF. Population based study of social and productive activities as predictors of survival among elderly Americans. BMJ 1999;319:478-83. DOI: https://doi.org/10.1136/bmj.319.7208.478
Beauchet O, Bastien T, Mittelman M, et al. Participatory art-based activity, community-dwelling older adults and changes in health condition: Results from a pre–post intervention, single-arm, prospective and longitudinal study. Maturitas 2020 [Epub ahead of print]. DOI: https://doi.org/10.1016/j.maturitas.2020.01.006
Harding AJ, Morbey H, Ahmed F, et al. What is important to people living with dementia?: the ‘long-list’of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions. BMC Geriatrics 2019;19:94. DOI: https://doi.org/10.1186/s12877-019-1103-5
Bond J, Corner L. Researching dementia: are there unique methodological challenges for health services research? Ageing Soc 2001;21:95-116. DOI: https://doi.org/10.1017/S0144686X01008091
Moore TF, Hollett J. Giving voice to persons living with dementia: The researcher’s opportunities and challenges. Nursing Sci Q 2003;16:163-7. DOI: https://doi.org/10.1177/0894318403251793251793
Quinn C. Conducting interviews with people with dementia and their caregivers. SAGE Publications Ltd; 2017. DOI: https://doi.org/10.4135/9781526404855
Phinney A, Moody EM, Small JA. The effect of a community-engaged arts program on older adults’ well-being. Canad J Aging 2014;33:336-45. DOI: https://doi.org/10.1017/S071498081400018X

How to Cite

Bazooband, A., Courtney-Pratt, H., & Doherty, K. (2021). Participatory community-based arts for older people living with dementia in the community: how are they evaluated? A scoping review. Geriatric Care, 7(1). https://doi.org/10.4081/gc.2021.9470